Category Archives: Epileptic siezures

September 2012 Newsletter

Hello family and friends,

Sveta and I have completed our first summer together. We first looked into each other’s eyes on September 5, 2010. She tells me that these two years seem like two months. We are very blessed to have each other as husband and wife, friends, and mission partners.

September 1st is best known in Ukraine as First Bell. This Day of Knowledge rings in the school year with celebration, speeches, and music. Teachers, as the educators, are the heart of education and are highly respected. Education is the heart and backbone of society and the country. The children honor the teachers with flowers and dress in formal clothes for this event. This day is most joyfully celebrated by the first grade children and those who are graduating.

As we have discussed in previous newsletters, MUCH is very concerned about educational opportunities in Ukraine. We are assisting children to attend college and university with our Transportation Scholarship Program. In addition, our efforts inspire the teachers in the orphanages to improve the education program to meet the current and future needs of the children. MUCH has a deep desire to open new doors to a new future for our children in the general education system and for the children with special needs.

Health Care has been our second focus during these fleeting summer months. In the massage programs, most of the children that we work with have some type of Cerebral Palsy. The biggest factor for these children is that as their muscles grow, the muscle imbalance grows non-symmetrically. Correcting the imbalance of the opposing muscles is the main goal, but it is not the complete solution. The weaker muscle must also have a stronger connection with the brain. The signal starting in the brain telling the muscle to move must become balanced with the signal telling the opposing muscles what to do. This remains an ongoing challenge until the child has stopped growing.

Sveta and I have been visiting the different masseuses in our Illichevsk program. Our visits included the MUCH clinic, a private clinic, and a number of home visits. We videoed the massage in progress while discussing the prognosis of the child. Of course, the mother was with the child, allowing us to learn even more about the home life and the parental support and encouragement of the child.

Some of the situations were very disheartening. Some of the children, being under the age of three, were completely immobile and mostly unaware of the environment around them. One child, completely breaking my heart, I believe suffers from Fetal Alcohol Syndrome. Other children that we visited were showing some signs of progress. When we began treating D. five years ago, she could not balance enough to walk. Now, at eight and a half years old, she walks with 90% balance and attends the regular school system.

Sveta has a heartwarming story about her connection with one of the mothers and her son. I know that you will enjoy reading her story, and I think that you will feel as if you are right there with her.

Sveta’s Journey

Before meeting Mark, I had a normal private life typical of the Ukrainian women: work, adult children who have their own families, grandchildren, parents, and friends. Nevertheless, there was internal dissatisfaction within my life. I wanted something more, but I did not know what. I learned this after living with Mark as his wife. My life began to be more beautiful when I started to serve the children in the orphanage and to help my beautiful husband in his mission at large.

Before I started giving the children massage, I was not aware that special-needs children existed. At the Dobromel Orphanage, as I was introduced to many children with many different special-needs, I began having great conversations with them. I saw their lives closer and more personal, causing a deep compassion for them. I loved these children very much.

My first massage experience with special needs children was in the Dobromel Orphanage last year in October before Mark and I were married. Mark saw the needs of massage for these children on previous visits. He talked with the director of the orphanage and proposed a massage program for children. He proposed a twenty-day massage demonstration with me and another masseuse, who is also an exercise therapist. The director agreed with one condition – that he would see results. The results were almost immediate, and the new exercise therapist/masseuse of the orphanage continues to see good results. Your support of our massage program makes this possible to continue.

During the first two weeks of a four-week stay, with Mark in America, I longed for my family. The whole night I was crying in my room on an uncomfortable bed with a metal mesh spring system. (I placed a wooden shelf from the cabinet to support the spring system). I wanted to go home to my children and grandchildren. I was miserable while away from my family. At this point, the thought occurred to me, “What about the
children who live in this boarding school/orphanage, many who do not have parents? What are they feeling? I can go home and be with my family; I have hope, but these children have no hope. What is their future?” My tears dried up immediately.

God gave me the opportunity to enjoy and understand the lives of the children in the orphanage. How great is their desire to be in a family, to be loved, to have a corner with toys, a cat, or a dog. Every evening, different children came to visit me and I treated them to sweets or cookies. They sat down on my bed and I talked with the children. They asked many questions and loved being photographed.

This month, Mark and I visited a family who has a child with a disability. This boy, D., is 3.3 years old. For two years, the doctors were afraid to prescribe massage for this seriously ill child, but his mother, L., was insistent and she begged for a massage appointment. The child cannot sit, stand, or roll over. He is only making small movements with his arms and legs. He looks at us with his beautiful blue eyes and long lashes. When you start talking to him, he smiles. D. can only eat food mashed through a blender. He does not have chewing reflex and can only swallow. His mother feeds him every 4 hours.
D began receiving massage 15 months ago. L. excitedly told us about the results. After each course of massage the child becomes calmer, the intensity of his epileptic seizures is reduced, and his muscles are relaxed. The soul of this child lives in a body that has multiple developmental disabilities. He cannot move but he has emotions and feelings. D. loves when L. holds him in her arms. Now he has a new reaction. Instead of only whimpering when he is unhappy, his face has begun to express emotion. He is now able to understand. He can be offended and this emotion is expressed in his face, and he begins to cry.
The doctors offered to operate on D’s. brain now that he is older, but it is an expensive operation and they do not give a guarantee for improvement. The government provided a special wheelchair, but it is very heavy and awkward to use. It is uncomfortable for the child, so L. rarely takes D. on the street for a walk and some fresh air, and her circle of friends is limited. She spends all of her time with her child, taking care of him.

L. was happy to meet us. We made friends with her and her beautiful little boy. Because she carries D. so much of the time, holding him in her arms, she has developed a severe forward curve in her back. I gave L. a 10-day massage in our home that yielded good results. With tears in her eyes, the young woman thanked Mark and you, dear friends, for your attention to her son, and for your help. Since she cannot bring her son to the clinic, our masseuse goes to their home and gives D. a massage on the kitchen table. L. was very touched that complete strangers would help her, and although she is optimistic about the difficult situation in her life, at that moment she was crying.

Communication with other people in such families is limited. Families with healthy children have a very busy pace of life and they have no time to pay attention to such families. Mark and I have decided to share our time periodically with families who have children with disabilities, to give them our attention, care, and to support parents and children in the realization of their personal and family projects. My time will provide massage for mothers, and other helpful activities, depending on the circumstances of families.

It remains amazing to me how people from America, who certainly have their own problems and difficulties, desire to help children in Ukraine. God bless you for your participation in these good works. I believe in the power of God’s love flowing through Mark, me, and you. I thank God for all that He does.

I am grateful to the disabled children who I met in my life. They helped me develop a new heart and new eyes to see their world and to see my life with new purpose and meaning.

Living my dream,
Sveta

Sveta and I will be with the children in Dobromel in the last days of September. Additional heartwarming stories will be coming your way.

Blessings of love and healing,

Mark and Sveta